Page Comparison

Note: This is based on the powerpoint presentation given by Milou. To be discussed with Milou. Depending on the FAIR objectives, we can: 1) change the scenario’s title; 2) split the scenario into multiple scenarios.

Actors

• Researcher Alice, PhD student at Radboudumc

• (FAIR) data steward Jim Jack at Radboudumc (Radboud Technology Center Data Stewardship (RTC-DS) / local data steward at Radboudumc)

Description

Researcher Alice has an existing dataset and would like to make his/ her dataset more FAIR.I think the scenario is about making the dataset available in HRI catalogue? Since in the conditions the dataset has already been published?Findable in the HRI Catalogue.

Conditions

• Alice has obtained informed consent for sharing/reusing the data (https://health-ri.atlassian.net/wiki/spaces/FSD/pages/138444817/1.+Make+sure+it+s+okay+to+share+meta+data)

• The dataset has been pseudonymised

  The dataset has a globally unique persistent identifier

  Publishing data

  already been published in a data repository

  could be another scenario to describeWe can maybe look into it at some point, perhaps in combination with the setting of the access levels and obtaining

  (Todo: We should make a page about publishing data in a repository (include information about pseudonymisation and level of access there)

  • The dataset has a globally unique persistent identifier

    ?

  • Could also be relevant for PRISMA Use Case

• The researcher has all the information needed to fill out the minimal required metadata items (2. Necessary info about your data)

How about here we say: the <type tbd> dataset has already been published in a repository, see scenario XYZ. This repository has provided her with a globally unique persistent identifier.

User perspective

1. Researcher Alice contacts Radboud Technology Centre Data Stewardship (RTC-DS) / local data steward to ask for support in making his/her dataset more FAIR.

2. (FAIR) data steward Jim Jack and researcher Alice discuss the FAIR objectives (/wiki/spaces/FSD/pages/294584321)

   1. In this scenario the objectives are? Making the data available The goal is to make the dataset Findable in the HRI Catalogue?

      Update the scenario’s title to reflect the objective

3. Researcher fills the mapping table corresponding to the Health-RI Core Metadata Schema (with help from data steward)

   1. Note: Forms according to core metadata schema are not yet available in Radboudumc FDP

   2. How does this work? And this table is then transformed to RDF for the next step by some script? Or?

   Metadata will be entered manually in (Todo: if possible add reference to this table, empty + example)

4. Currently the data from this table is manually copied by the data steward to the form provided by the Radboudumc FDP (will be automated in the future)

   1. What does “will be entered manually” mean? Uploading of the file generated (?) by step 3?

   2. Is this done by the Data Steward? Or by the researcher?

   3. Rewrite to something like: “Data steward enters (?) data in the Radboudumc FDP (will… )“

   Radboudumc FDP will

   1. The form currently available in the FDP is not the one compliant with the HRI Core Schema.

5. Radboudumc FDP can be be harvested by the Health-RI National Catalogue

TBD - what to do with this (it’s true, but not necessarily Scenario material):

• Accessible

  • Data and metadata protocols are open and free

  • The researcher defines level of access in data repository

    • Perhaps as part of the “Publishing data in a data repository“ scenario?

  • Restricted access for sensitive data

    • Perhaps as part of the “Publishing data in a data repository“ scenario?

  • Metadata records will remain accessible, even when the data is no longer available (FDP & RDR)

• Interoperable

  • Interoperability aspects of the metadata are addressed by the FDP

  • RDF, FAIR-compliant vocabularies, including references to other metadata (e.g., PID for organisations [ROR] and people [ORCID])

  • Data model will be defined

    • Could be another scenario

    • Are we talking semantic modelling here? Including triple store etc? That could indeed be another scenario

• Reusable

  • The researcher provides all relevant documentation needed to understand the data, such as the study protocol, data dictionary, syntax etc.

    • Provides where? (and perhaps to whom?)

  • The researcher refers to a reuse license in the metadata

    • Preferably machine-readable

    • License is in the core metadata schema. We could maybe add it as an example for 3a.

    • We could even create a scenario about filling in the metadata schema, if relevant?

      • Part of the scenario could be: she refers to a machine-readable license (not sure how that works/how to do this, so could be interesting)

  • The researcher complies with community standards

    • Use or define FAIR Implementation Profile

      • tbd

...

1. , thereby making the dataset available in the HRI Catalogue (Findable)

Alternative Flow