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⚠️ The process described below is subject to change
Actors
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Researcher Alice, PhD student at Radboudumc
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(FAIR) data steward Jack at Radboudumc (Radboud Technology Center Data Stewardship (RTC-DS) / local data steward at Radboudumc)
Description
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Bob, manager of the biobank
Jim, biobank coordinator
Carie, system engineer for PaNaMa
Description
Bob is the manager of the biobank and he wants to make the biobank Findable in the HRI Catalogue. He delegates this job to Jim, the biobank coordinator.
How does this work? E.g.
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.g.
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Do we need to make a distinction between a De Novo biobank and a biobank with material collected for healthcare (nader gebruik)? Or will information from the latter never be available in the catalogue.
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Researcher Alice has an existing dataset and would like to make her dataset Findable in the HRI Catalogue.
Conditions
<Person> has obtained consent for using There is informed consent to use the biomaterial for further research
Alice has obtained informed consent for sharing/reusing the data
The dataset has already been published in a data repository
The dataset has a globally unique persistent identifier
User perspective
What’s the process in simple steps for our actor? Idea here is that someone who is creating a biobank or is the owner of one should be able to follow the steps, which would end in the biobank’s core metadata being available in the HRI catalogue.
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User perspective
Bob delegates to Jim
Jim registers the biobank in PaNaMa
Jim tells its ok to share the data with the local FDP
Carie creates a manual export from PaNaMa
Carie makes the export available for Euphoria (Research Data Platform)
Euphoria is where the data should come together.
FDP reads the data from Euphoria
The FDP can be harvested by the HRI Catalogue
Data from PaNaMa
Probably still relevant:
The FAIR objectives - Metroline: Define your objectives for making data FAIR
The goal is to make the biobank Findable in the HRI Catalogue
They discuss the requirements and Alice has all the information needed to fill out the minimal required metadata items - /wiki/spaces/FSD/pages/273350684 and Health-RI Metadata Schema
The team requirements for achieving these objectives - Metroline: Build the Team
Given the goal, they decide no additional expertise is required
Whether further training is required to achieve these objectives - Metroline: Get Training
Given the goal, they decide no further training is required
Then what? How does the biobank person (owner? data steward?) in the UMCG get the core metadata filled in and how does this become available in UMCG’s FDP? (Current situation, but we can also add something about the future)
Researcher fills the mapping table corresponding to the Health-RI Core Metadata Schema (with help from data steward) (Todo: if possible add reference to this table, empty + example)
Currently the data from this table is manually copied by the data steward to the form provided by the Radboudumc FDP (will be automated in the future)
The form currently available in the FDP is not the one compliant with the HRI Core Schema.
Radboudumc FDP can be be harvested by the Health-RI National Catalogue, thereby making the dataset available in the HRI Catalogue (Findable)
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Researcher Alice contacts Radboud Technology Centre Data Stewardship (RTC-DS) / local data steward for support.
(FAIR) data steward Jack and researcher Alice discuss
The FAIR objectives - Metroline: Define your objectives for making data FAIR
The goal is to make the dataset Findable in the HRI Catalogue
They discuss the requirements and Alice has all the information needed to fill out the minimal required metadata items - /wiki/spaces/FSD/pages/273350684 and Health-RI Metadata Schema
Doing a Pre-FAIR Assessment to discover the current FAIRness of the dataset - Metroline: Pre-FAIR Assessment
The team requirements for achieving these objectives - Metroline: Build the Team
Given the goal, they decide no additional expertise is required
Whether further training is required to achieve these objectives - Metroline: Get Training
Given the goal, they decide no further training is required
Researcher fills the mapping table corresponding to the Health-RI Core Metadata Schema (with help from data steward) (Todo: if possible add reference to this table, empty + example)
Currently the data from this table is manually copied by the data steward to the form provided by the Radboudumc FDP (will be automated in the future)
The form currently available in the FDP is not the one compliant with the HRI Core Schema.
Radboudumc FDP can be be harvested by the Health-RI National Catalogue, thereby making the dataset available in the HRI Catalogue (Findable)
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