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📌 Introduction

In this section, we describe the basics of metadata and explain what metadata mapping is. We also look at the Health-RI Core Metadata Schema and the metadata standards it builds upon. This page is intended for a general audience. For details on the standards and the schema, please visit the github specifications dedicated for data experts or data stewards https://github.com/Health-RI/health-ri-metadata/ .

🧠 What is metadata

Metadata is essentially data about data. It provides information that describes various aspects of your data, such as its description, the owner of the data, the type of data. In other words, metadata helps understanding and managing data effectively by providing additional information about it.

Metadata serves as the backbone of effective data management and analysis in the life sciences and healthcare domains. It enables researchers, clinicians, and policymakers to derive meaningful insights from vast amounts of data while ensuring its integrity, reliability and confidentiality, by provide a standardization, interoperability and machine readabilty of the shared metadata.

🔎 Metadata standards

A metadata standard is a set of rules, guidelines and conventions that define how metadata should be structured, formatted and described within a particular domain or context. Adhering to such standards ensures consistency, interoperability and effective management of metadata across different systems, organizations and disciplines.

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DCAT-AP: DCAT Application Profile for Data Portals in Europe is a metadata standard developed by the European Commission to facilitate the interoperability of data catalogs and portals across European countries. It builds upon the DCAT (Data Catalog Vocabulary) standard and extends it with additional requirements and recommendations tailored to the European context.

🎯 HRI Metadata Schema

The National Health Data Catalogue currently works with a Core Metadata Schema. This Core Metadata Schema is a formal shared conceptualisation of the requirements to find and reuse information across Health-RI nodes via the National Catalogue. It represents a set of minimal elements for describing each resource (including dataset) with common metadata. The current version of the Core Metadata Schema includes DCAT v3 and some selected DCAT-AP mandatory classes and their definitions.

The set is split into several classes describing the data. At the moment four classes (Dataset, Catalog, Resource, and Agent) are mandatory. Each class is populated by a set of mandatory and recommended variables. You can find all of the descriptions of variables and classes here: Core Metadata Schema Specification

📋 What is metadata mapping

Metadata mapping is the process of establishing connections between corresponding metadata values or fields across different systems. In simple terms, it ensures that your metadata schema for your data is transformed to the HRI metadata schema in the correct way. It involves identifying and linking similar pieces of metadata information from one system to the relevant content or data elements in another system. This mapping ensures consistency and coherence between disparate datasets or databases, allowing for efficient data integration and interoperability. By associating equivalent metadata values or fields, metadata mapping enables seamless communication and exchange of information between systems, facilitating accurate data discovery, retrieval, and interpretation.

Below is an example of simple metadata of a blood a sample. It describes the important information about the sample including ID of the sample, ID of the patient, and a diagnosis:

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metadata from the PRISMA study. It contains information about the data available:

Here is the same data mapped towards the DCAT-AP standard as a datasetHealth-RI metadata core. It contains the same information and adds some mandatory variables like description. However, however, now this data can be easily processed by a computer is machine readable and is in a format that is common for many places on the web.

@prefix dcat: <http://www.w3.org/ns/dcat#> .
@prefix dct: <http://purl.org/dc/terms/> .
@prefix foaf: <http://xmlns.com/foaf/0.1/> .
@prefix vcard: <http://www.w3.org/2006/vcard/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

# Catalog description
<https://fdp.radboudumc.nl/catalogue/prisma>
  <>  a dcat:Dataset:Catalog ;
    dct:title "Personalised RISk-based MAmmascreening Study (PRISMA)" ;
    dct:description "The primary aim of the PRISMA study is to investigate the potential value of risk-tailored versus traditional breast cancer screening protocols in the Netherlands. Data collection took place between 2014-2019, resulting in ∼67,000 mammograms, ∼38,000 surveys, ∼10,000 blood samples and ∼600 saliva samples." ;
    dct:identifier "BS001":publisher [ a foaf:Agent ; foaf:name "Radboudumc (Publisher)" ; dct:identifier <https://ror.org/05wg1m734> ] ;
    dcat:dataset <https://fdp.radboudumc.nl/dataset/37d6ad17-aa35-425c-946e-855838d3f9cc> .

# Dataset description
<https://fdp.radboudumc.nl/dataset/37d6ad17-aa35-425c-946e-855838d3f9cc>
    a dcat:Dataset ;
    dct:title "BloodPRISMA Questionnaire Sampledata" ;
    dct:description "Metadata for a blood sampleThe extensive questionnaire covers a number of potential breast cancer risk predictors such as demographics, personal characteristics, reproductive characteristics, medication, lifestyle, health status, family history, psychosocial characteristics." ;
    dct:issued "2024-0107-15T0802T10:3049:0007"^^xsd:dateTime ;
    dct:publisher "Lab Technician, Sarah Leemodified "2024-09-09T08:54:32"^^xsd:dateTime ;
    dct:identifier <https://fdp.radboudumc.nl/dataset/37d6ad17-aa35-425c-946e-855838d3f9cc> ;
    dct:creator [ a foaf:Agent ; foaf:name "J. Doe (Creator)" ; dct:identifier <https://orcid.org/0000-0000-0000-0000> ] ;
    dct:subject "Hypertension":publisher [ a foaf:Agent ; foaf:name "Radboudumc (Publisher)" ; dct:identifier <https://ror.org/05wg1m734> ] ;
    dcat:theme <http://publications.europa.eu/resource/authority/data-theme/HEAL> ;
    dct:license <https://data.ru.nl/doc/dua/RUMC-RA-DUA-1.0.html> ;
    dcat:distribution <https://fdp.radboudumc.nl/distribution/csv> ;
    dcat:landingPage "https://example.com/blood_sample":contactPoint [
        a vcard:Kind ;
        vcard:hasEmail <mailto:firstname.lastname@radboudumc.nl> ;
        vcard:fn "J. Doe"
    ] .

# Distribution details (CSV)
<https://fdp.radboudumc.nl/distribution/csv>
    a dcat:Distribution ;
    dcat:accessRights "Informed consent obtained"accessURL <doi:not_yet_available> ;
    dcat:mediaType <https://www.iana.org/assignments/media-types/text/csv> ;
    dcat:themetitle "HealthPRISMA Questionnaire data - CSV format" ;
    dcat:keyworddescription "Blood sample", "Hypertension", "CBC", "Lipid Panel", "Glucose TestThe questionnaire data in CSV format." .

# Agent description (Publisher)
<https://ror.org/05wg1m734>
    a foaf:Agent ;
    foaf:name "Radboudumc (Publisher)" ;
    dcatdct:temporal "2024-01-15T08:30:00/2024-01-15T10:00:00"^^xsd:dateTimeidentifier <https://ror.org/05wg1m734> .

# Agent description (Creator)
<https://orcid.org/0000-0000-0000-0000>
    a foaf:Agent ;
    dcatfoaf:hasVersionname "1.0J. Doe (Creator)" ;
    dcatdct:conformsToidentifier <https://eurlorcid.link/dcat-ap>org/0000-0000-0000-0000> .

To map your metadata you first need to understand the structure of your metadata and their semantic meaning and the ontology (vocabulary) used to to describe your data in a Resource Description Framework (RDF), in our case DCAT V3, format. The general outline of the mapping pipeline can be found here: https://health-ri.atlassian.net/wiki/spaces/FSD/pages/edit-v2/290291734?draftShareId=ff45a2e2-80ee-49aa-b6d6-c04dedb6f9f8

Next steps

After mapping/transforming your data properties to the classes and variables of the HRI model, you need to validate your model. This step ensures that the new model both accurately represent the original data as well as adheres to the HRI metadata structure.

Once your RDF data is ready, you can publish it to FAIR Data Point, where it can be harvested by the Catalogue. More information about this step can be found here: 3. Exposing metadata

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