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⚠️ The process described below is subject to change
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Bob, manager of the biobank
Jim, biobank coordinator
CarieCarrie, system engineer for PaNaMa
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Bob is the manager of the biobank and he wants to make the biobank Findable in the HRI Catalogue. He delegates this job to Jim, the biobank coordinator.
How does this work? E.g.
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Researcher Alice has an existing dataset and would like to make her dataset Findable in the HRI Catalogue.
Conditions
There is informed consent to use the biomaterial for further research
User perspective
Bob, the manager of the biobank, wants to make his biobank Findable in the HRI Catalogue.
For more information about FAIR objectives, see Metroline: Define your objectives for making data FAIR
Bob delegates this task to Jim, a biobank coordinator.
Jim registers the biobank in PaNaMa following normal procedures.Jim tells its ok
This information includes the information that is necessary for the HRI Core Metadata
Jim gives permission to share the data with the local FDP
Carie Carrie creates a manual export from PaNaMa.
Carie She makes the export available for Euphoria (Research Data Platform).
Euphoria is where the data should come together.
The local FDP reads the data from Euphoria.
The FDP can now be harvested by the HRI Catalogue
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Data from PaNaMa
Probably still relevant:
The FAIR objectives - Metroline: Define your objectives for making data FAIR
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the HRI Catalogue
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They discuss the requirements and Alice has all the information needed to fill out the minimal required metadata items - /wiki/spaces/FSD/pages/273350684 and Health-RI Metadata Schema
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The team requirements for achieving these objectives - Metroline: Build the Team
Given the goal, they decide no additional expertise is required
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Whether further training is required to achieve these objectives - Metroline: Get Training
Given the goal, they decide no further training is required
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Then what? How does the biobank person (owner? data steward?) in the UMCG get the core metadata filled in and how does this become available in UMCG’s FDP? (Current situation, but we can also add something about the future)
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Researcher fills the mapping table corresponding to the Health-RI Core Metadata Schema (with help from data steward) (Todo: if possible add reference to this table, empty + example)
Currently the data from this table is manually copied by the data steward to the form provided by the Radboudumc FDP (will be automated in the future)
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Radboudumc FDP can be be harvested by the Health-RI National Catalogue, thereby making the dataset available in the HRI Catalogue (Findable)
Researcher Alice contacts Radboud Technology Centre Data Stewardship (RTC-DS) / local data steward for support.
(FAIR) data steward Jack and researcher Alice discuss
The FAIR objectives - Metroline: Define your objectives for making data FAIR
The goal is to make the dataset Findable in the HRI Catalogue
They discuss the requirements and Alice has all the information needed to fill out the minimal required metadata items - /wiki/spaces/FSD/pages/273350684 and Health-RI Metadata Schema
Doing a Pre-FAIR Assessment to discover the current FAIRness of the dataset - Metroline: Pre-FAIR Assessment
The team requirements for achieving these objectives - Metroline: Build the Team
Given the goal, they decide no additional expertise is required
Whether further training is required to achieve these objectives - Metroline: Get Training
Given the goal, they decide no further training is required
Researcher fills the mapping table corresponding to the Health-RI Core Metadata Schema (with help from data steward) (Todo: if possible add reference to this table, empty + example)
Currently the data from this table is manually copied by the data steward to the form provided by the Radboudumc FDP (will be automated in the future)
The form currently available in the FDP is not the one compliant with the HRI Core Schema.
Radboudumc FDP can be be harvested by the Health-RI National Catalogue, thereby making the dataset available in the HRI Catalogue (Findable)
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