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📌 Introduction

In this section, we describe the basics of metadata and explain what metadata mapping is. We also look at the Health-RI Core Metadata Schema and the metadata standards it builds upon. This page is intended for a general audience. For details on the standards and the schema, please visit the github specifications dedicated for data experts or data stewards https://github.com/Health-RI/health-ri-metadata/ .

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Metadata mapping is the process of establishing connections between corresponding metadata values or fields across different systems. In simple terms, it ensures that your metadata schema for your data is transformed to the HRI metadata schema in the correct way. It involves identifying and linking similar pieces of metadata information from one system to the relevant content or data elements in another system. This mapping ensures consistency and coherence between disparate datasets or databases, allowing for efficient data integration and interoperability. By associating equivalent metadata values or fields, metadata mapping enables seamless communication and exchange of information between systems, facilitating accurate data discovery, retrieval, and interpretation.

Below is an example of simple metadata of a blood a sample. It describes the important information about the sample including ID of the sample, ID of the patient, and a diagnosis:

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metadata from the PRISMA study. It contains information about the data available:

Class

Property

Property Label

Example

dcat:Catalog

dct:description

Description

The primary aim of the PRISMA study is to investigate the potential value of risk-tailored versus traditional breast cancer screening protocols in the Netherlands. Data collection took place between 2014-2019, resulting in ∼67,000 mammograms, ∼38,000 surveys, ∼10,000 blood samples and ∼600 saliva samples.

dct:publisher

Publisher

foaf:Agent

dct:title

Title

Personalised RISk-based MAmmascreening Study (PRISMA)

dcat:Dataset

dcat:contactPoint

Contact Point

vcard:Kind

dct:creator

Creator

foaf:Agent

dct: description

Description

The extensive questionnaire covers a number of potential breast cancer risk predictors such as demographics, personal characteristics, reproductive characteristics, medication, lifestyle, health status, family history, psychosocial characteristics.

dct:issued

Release date

2024-07-02T10:49:07

dct: identifier

Identifier

https://fdp.radboudumc.nl/dataset/37d6ad17-aa35-425c-946e-855838d3f9cc

dct:modified

Modified

2024-09-09T08:54:32

dct:publisher

Publisher

foaf:Agent

dcat:theme

Theme

http://publications.europa.eu/resource/authority/data-theme/HEAL

dct:title

Title

PRISMA Questionnaire data

dct:license

License

https://data.ru.nl/doc/dua/RUMC-RA-DUA-1.0.html

dcat:Distribution

dcat:accessURL

Access URL

DOI (not yet available)

dcat:mediaType

Format

https://www.iana.org/assignments/media-types/text/csv

dcat:title

Title

PRISMA Questionnaire data - CSV format

dcat:description

Description

The questionnaire data in CSV format.

foaf:Agent

foaf:name

name

Radboudumc (Publisher)

dct:identifier

identifier

https://ror.org/05wg1m734 (Publisher)

vcard:Kind

vcard:hasEmail

has email

firstname.lastname@radboudumc.nl

vcard:hasName

has name

J. Doe

foaf:Agent

foaf:name

name

J. Doe (Creator)

dct:identifier

identifier

https://orcid.org/0000-0000-0000-0000 (Creator)

Here is the same data mapped towards the DCAT-AP standard as a datasetHealth-RI metadata core. It contains the same information and adds some mandatory variables like description. However, however, now this data can be easily processed by a computer is machine readable and is in a format that is common for many places on the web.

Code Block
@prefix dcat: <http://www.w3.org/ns/dcat#> .
@prefix dct: <http://purl.org/dc/terms/> .
@prefix foaf: <http://xmlns.com/foaf/0.1/> .
@prefix vcard: <http://www.w3.org/2006/vcard/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

# Catalog description
<https://fdp.radboudumc.nl/catalogue/prisma>
  <>  a dcat:Dataset:Catalog ;
    dct:title "Personalised RISk-based MAmmascreening Study (PRISMA)" ;
    dct:description "The primary aim of the PRISMA study is to investigate the potential value of risk-tailored versus traditional breast cancer screening protocols in the Netherlands. Data collection took place between 2014-2019, resulting in ∼67,000 mammograms, ∼38,000 surveys, ∼10,000 blood samples and ∼600 saliva samples." ;
    dct:identifier "BS001":publisher [ a foaf:Agent ; foaf:name "Radboudumc (Publisher)" ; dct:identifier <https://ror.org/05wg1m734> ] ;
    dcat:dataset <https://fdp.radboudumc.nl/dataset/37d6ad17-aa35-425c-946e-855838d3f9cc> .

# Dataset description
<https://fdp.radboudumc.nl/dataset/37d6ad17-aa35-425c-946e-855838d3f9cc>
    a dcat:Dataset ;
    dct:title "BloodPRISMA Questionnaire Sampledata" ;
    dct:description "Metadata for a blood sampleThe extensive questionnaire covers a number of potential breast cancer risk predictors such as demographics, personal characteristics, reproductive characteristics, medication, lifestyle, health status, family history, psychosocial characteristics." ;
    dct:issued "2024-0107-15T0802T10:3049:0007"^^xsd:dateTime ;
    dct:publisher "Lab Technician, Sarah Leemodified "2024-09-09T08:54:32"^^xsd:dateTime ;
    dct:identifier <https://fdp.radboudumc.nl/dataset/37d6ad17-aa35-425c-946e-855838d3f9cc> ;
    dct:creator [ a foaf:Agent ; foaf:name "J. Doe (Creator)" ; dct:identifier <https://orcid.org/0000-0000-0000-0000> ] ;
    dct:subject "Hypertension":publisher [ a foaf:Agent ; foaf:name "Radboudumc (Publisher)" ; dct:identifier <https://ror.org/05wg1m734> ] ;
    dcat:theme <http://publications.europa.eu/resource/authority/data-theme/HEAL> ;
    dct:license <https://data.ru.nl/doc/dua/RUMC-RA-DUA-1.0.html> ;
    dcat:distribution <https://fdp.radboudumc.nl/distribution/csv> ;
    dcat:landingPage "https://example.com/blood_sample":contactPoint [
        a vcard:Kind ;
        vcard:hasEmail <mailto:firstname.lastname@radboudumc.nl> ;
        vcard:fn "J. Doe"
    ] .

# Distribution details (CSV)
<https://fdp.radboudumc.nl/distribution/csv>
    a dcat:Distribution ;
    dcat:accessRights "Informed consent obtained"accessURL <doi:not_yet_available> ;
    dcat:mediaType <https://www.iana.org/assignments/media-types/text/csv> ;
    dcat:themetitle "HealthPRISMA Questionnaire data - CSV format" ;
    dcat:keyworddescription "Blood sample", "Hypertension", "CBC", "Lipid Panel", "Glucose TestThe questionnaire data in CSV format." .

# Agent description (Publisher)
<https://ror.org/05wg1m734>
    a foaf:Agent ;
    foaf:name "Radboudumc (Publisher)" ;
    dcatdct:temporal "2024-01-15T08:30:00/2024-01-15T10:00:00"^^xsd:dateTimeidentifier <https://ror.org/05wg1m734> .

# Agent description (Creator)
<https://orcid.org/0000-0000-0000-0000>
    a foaf:Agent ;
    dcatfoaf:hasVersionname "1.0J. Doe (Creator)" ;
    dcatdct:conformsToidentifier <https://eurlorcid.link/dcat-ap>org/0000-0000-0000-0000> .

To map your metadata you first need to understand the structure of your metadata and their semantic meaning and the ontology (vocabulary) used to to describe your data in a Resource Description Framework (RDF), in our case DCAT V3, format. The general outline of the mapping pipeline can be found here: https://health-ri.atlassian.net/wiki/spaces/FSD/pages/edit-v2/290291734?draftShareId=ff45a2e2-80ee-49aa-b6d6-c04dedb6f9f8

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Once your RDF data is ready, you can publish it to FAIR Data Point, where it can be harvested by the Catalogue. More information about this step can be found here: 3. Exposing metadata

Additional resources

Technical details on DCAT AP and FAIR Datapoints - Youtube video, Health-RI

HRI Github - You can find recourses and examples on the Health-RI metadata Github. 

Resources from the EU Open Data Explained, including a general training on metadata and basic and advanced level resourses on DCAT and DCAT-AP.

FAIR Metrolines (note: some pages under developement):

Metroline Step: Register resource level metadata

Metroline Step: Analyse data semantics

Metroline Step: Apply core metadata (meta)data model

Metroline Step: Create or reuse a semantic (meta)data model

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