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📌 Introduction

In this section, we describe the basics of metadata and explain what metadata mapping is. We also look at the Health-RI Core Metadata Schema and the metadata standards it builds upon. This page is intended for a general audience. For details on the standards and the schema, please visit the github specifications dedicated for data experts or data stewards https://github.com/Health-RI/health-ri-metadata/tree/master .

🧠 What is metadata

Metadata is essentially data about data. It provides information that describes various aspects of your data, such as its description, the owner of the data, the type of data. In other words, metadata helps understanding and managing data effectively by providing additional information about it.

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CataloguePersonalised RISk-based MAmmascreening Study (PRISMA)

Class

Property

Property Label

Description/Example

dcat:

dcat:dataset

dataset

Catalog

dct:description

DescriptionThis catalog describes the core metadata of Radboudumc datasets

The primary aim of the PRISMA study is to investigate the potential value of risk-tailored versus traditional breast cancer screening protocols in the Netherlands. Data collection took place between 2014-2019, resulting in ∼67,000 mammograms, ∼38,000 surveys, ∼10,000 blood samples and ∼600 saliva samples.

dct:publisher

Publisher

https://ror.org/05wg1m734 foaf:Agent

dct:title

TitleRadboudumc Core Metadata

Personalised RISk-based MAmmascreening Study (PRISMA)

dcat:Dataset

dcat:ContactPointcontactPoint

Contact Point

foafvcard:agentKind

dct:creator

Creator name

foaf:agentAgent

dct: description

Description

The primary aim of the PRISMA study was to investigate the potential value of risk-tailored versus traditional breast cancer screening protocols in the Netherlands. Data collection took place between 2014-2019, resulting in ∼67,000 mammograms, ∼38,000 surveys, ∼10,000 blood samples and ∼600 saliva samplesextensive questionnaire covers a number of potential breast cancer risk predictors such as demographics, personal characteristics, reproductive characteristics, medication, lifestyle, health status, family history, psychosocial characteristics.

dct:issued

Issued

15/01/2024Release date

2024-07-02T10:49:07

dct: identifier

Identifier

https://fdp.radboudumc.nl/dataset/8793226e37d6ad17-9a7caa35-4e8c425c-9cef946e-fce41ef0b865855838d3f9cc

dct:modified

Modified15

/01/20242024-09-09T08:54:32

dct:publisher

Publisher

foaf:agentAgent

dcat:theme

Theme

http://purlpublications.obolibraryeuropa.orgeu/obo/MONDO_0007254, http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl#C20116resource/authority/data-theme/HEAL

dct:title

Title

Personalised RISk-based MAmmascreening Study (PRISMA)PRISMA Questionnaire data

dct:typelicense

TypeLicense

httphttps://purldata.ru.orgnl/dcdoc/dcmitype/Dataset

dct:license

License

Not yet available

dua/RUMC-RA-DUA-1.0.html

dcat:Distribution

dcat:accessURL

Access URL

DOI (not yet available)

dcat:MediaTypemediaType

Format

https://www.iana.org/assignments/media-types/text/csv csv

dcat:title

Title

PRISMA Questionnaire data - CSV format

dcat:description

Description

The extensive questionnaire covers different topics such as demographics, personal characteristics, reproductive characteristics, medication, lifestyle, health status, family history, psychosocial characteristicsquestionnaire data in CSV format.

foaf:Agent

foaf:name

name

Radboudumc (Publisher)

dct:identifier

identifier

https://ror.org/05wg1m734 (Publisher)

vcard:Kind

vcard:hasEmail

has email

firstname.lastname@radboudumc.nl

vcard:hasName

has name

J. Doe

foaf:Agent

foaf:name

name

J. Doe (Creator)

dct:identifier

identifier

https://orcid.org/0000-0000-0000-0000 (Creator)

Here is the same data mapped towards the Health-RI metadata core. It contains the same information, however, now this data can be easily processed by a computer is machine readable and is in a format that is common for many places on the web.

Code Block
@prefix dcat: <http://www.w3.org/ns/dcat#> .
@prefix dct: <http://purl.org/dc/terms/> .
@prefix foaf: <http://xmlns.com/foaf/0.1/> .
@prefix vcard: <http://www.w3.org/2006/vcard/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

# Catalog description
<https://fdp.radboudumc.nl/catalogue>catalogue/prisma>
    a dcat:Catalog ;
    dct:title "Radboudumc Core MetadataPersonalised RISk-based MAmmascreening Study (PRISMA)" ;
    dct:description "This catalog describesThe primary aim of the PRISMA study is to investigate the corepotential metadata of Radboudumc datasetsvalue of risk-tailored versus traditional breast cancer screening protocols in the Netherlands. Data collection took place between 2014-2019, resulting in ∼67,000 mammograms, ∼38,000 surveys, ∼10,000 blood samples and ∼600 saliva samples." ;
    dct:publisher [ a foaf:Agent ; foaf:name "Radboudumc (Publisher)" ; dct:identifier <https://ror.org/05wg1m734> ] ;
    dcat:dataset <https://fdp.radboudumc.nl/dataset/8793226e37d6ad17-9a7caa35-4e8c425c-9cef946e-fce41ef0b865>855838d3f9cc> .

# Dataset description
<https://fdp.radboudumc.nl/dataset/8793226e37d6ad17-9a7caa35-4e8c425c-9cef946e-fce41ef0b865>855838d3f9cc>
    a dcat:Dataset ;
    dct:title "PersonalisedPRISMA RISk-based MAmmascreening Study (PRISMA)Questionnaire data" ;
    dct:description "The primaryextensive aimquestionnaire ofcovers thea PRISMAnumber study was to investigate the potential value of risk-tailored versus traditional of potential breast cancer screeningrisk protocolspredictors insuch theas Netherlands.demographics, Datapersonal collectioncharacteristics, tookreproductive placecharacteristics, between 2014-2019medication, lifestyle, resultinghealth in ∼67,000 mammograms, ∼38,000 surveys, ∼10,000 blood samples and ∼600 saliva samples."status, family history, psychosocial characteristics." ;
    dct:issued "2024-07-02T10:49:07"^^xsd:dateTime ;
    dct:issuedmodified "2024-01-1509-09T08:54:32"^^xsd:datedateTime ;
    dct:identifier <https://fdp.radboudumc.nl/dataset/8793226e37d6ad17-9a7caa35-4e8c425c-9cef946e-fce41ef0b865>855838d3f9cc> ;
    dct:modified "2024-01-15"^^xsd:datecreator [ a foaf:Agent ; foaf:name "J. Doe (Creator)" ; dct:identifier <https://orcid.org/0000-0000-0000-0000> ] ;
    dct:publisher [ a foaf:Agent ; foaf:name "Radboudumc (Publisher)" ; dct:identifier <https://ror.org/05wg1m734> ] ;
    dcat:theme <http://purlpublications.obolibraryeuropa.orgeu/obo/MONDO_0007254>, <http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl#C20116>resource/authority/data-theme/HEAL> ;
    dct:typelicense <http<https://purldata.ru.orgnl/dcdoc/dcmitype/Dataset>dua/RUMC-RA-DUA-1.0.html> ;
    dctdcat:license "Not yet available" distribution <https://fdp.radboudumc.nl/distribution/csv> ;
    dcat:distributioncontactPoint [
        a dcatvcard:DistributionKind ;
        dcatvcard:accessURLhasEmail <doi:not_yet_available><mailto:firstname.lastname@radboudumc.nl> ;
        dcatvcard:mediaTypefn "text/csvJ. Doe"
;    ] .

#  dcat:title "PRISMA Questionnaire data" ;
   Distribution details (CSV)
<https://fdp.radboudumc.nl/distribution/csv>
    a dcat:Distribution ;
    dcat:description "The extensive questionnaire covers different topics such as demographics, personal characteristics, reproductive characteristics, medication, lifestyle, health status, family history, psychosocial characteristics."
    ] ;
    dcat:ContactPoint [
   accessURL <doi:not_yet_available> ;
    dcat:mediaType <https://www.iana.org/assignments/media-types/text/csv> ;
    dcat:title "PRISMA Questionnaire data - CSV format" ;
    dcat:description "The questionnaire data in CSV format." .

# Agent description (Publisher)
<https://ror.org/05wg1m734>
    a foaf:Agent ;
        foaf:name "Radboudumc (Publisher)" ;
        vcard:hasEmail <mailto:contact@radboudumc.nl>
    ] .
dct:identifier <https://ror.org/05wg1m734> .

# Agent description (Creator)
<https://rororcid.org/05wg1m734>0000-0000-0000-0000>
    a foaf:Agent ;
    foaf:name "RadboudumcJ. Doe (Creator)" ;
    dct:identifier <https://rororcid.org/05wg1m734>0000-0000-0000-0000> .

To map your metadata you first need to understand the structure of your metadata and their semantic meaning and the ontology (vocabulary) used to to describe your data in a Resource Description Framework (RDF), in our case DCAT V3, format. The general outline of the mapping pipeline can be found here: https://health-ri.atlassian.net/wiki/spaces/FSD/pages/edit-v2/290291734?draftShareId=ff45a2e2-80ee-49aa-b6d6-c04dedb6f9f8

...