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There are several ways a data holder can onboard their data to the Catalogue. However, firstly the data needs to be properly prepared and described. The Catalogue uses a Health-RI metadata schema based on DCAT v3 and DCAT AP. Currently, this metadata schema uses relatively general and overarching classes and definitions, forming the so-called Core metadata schema. Learn more about the schema here https://github.com/Health-RI/health-ri-metadata/tree/master. This core metadata schema will be further expanded in the future (see What is the future of the National Health Data Catalogue)
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There are several steps needed to publish your metadata on the National Catalogue. Here we show the basic steps. You can find some examples of onboarding and scenarios here. For technical documentation please refer to the Health-RI Github: https://github.com/Health-RI/health-ri-metadata/tree/master.
General onboarding steps
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If the metadata is approved by the data holder/provider it is then onboarded to the National Health Data Catalogue. If possible, the data holder/provider is asked to share any issues and feedback to the Health-RI contact.
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Need help with onboarding?Feel free to join our weekly Walk-in hour, where one of our colleagues is ready to help you with any issues. To register please fill in this sign-up sheet. For information about the time, as well as the link to join, please see HRI agenda https://www.health-ri.nl/nieuws/agenda or contact Lucie Kulhankova. We also collect workarounds for common issues in Known issues. |
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The current version of the Catalogue allows for the general description of the data and metadata. To allow more domain specific search-ability the metadata descriptions will be expanded in the future. We can imagine the metadata as a sunflower where the core represents the common values across domains while each domain has its own petal describing the specific metadata needs of the researchers in each domain (Figure 3). The expansion of metadata will allow researchers to find data relevant to their research.
In the future, a request tool will be connected to the Catalogue. This tool will allow researchers and other users to request access to datasets they find relevant. The request will be processed and reviewed centrally in a secure environment and users will be able receive answers on their queries in case of federated analysis.
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