STATUS: IN DEVELOPMENT
⚠️ The process described below is subject to change
Actors
Bob, manager of the biobank
Jim, biobank coordinator
Carrie, system engineer for PaNaMa
Description
Bob is the manager of the biobank and he wants to make the biobank Findable in the HRI Catalogue.
Conditions
There is informed consent to use the biomaterial for further research
User perspective
Bob, the manager of the biobank, wants to make his biobank Findable in the HRI Catalogue.
For more information about FAIR objectives, see Metroline: Define your objectives for making data FAIR
Bob delegates this task to Jim, a biobank coordinator.
Jim registers the biobank in PaNaMa following normal procedures.
This information includes the information that is necessary for the HRI Core Metadata
Jim gives permission to share the data with the local FDP
Rene Oostergo how does this permission work? Is that an email to Carrie? Or some checkbox? Something else?
Carrie creates a manual export from PaNaMa.
She makes the export available for Euphoria (Research Data Platform).
Euphoria is where the data should come together.
The local FDP reads the data from Euphoria.
The FDP can now be harvested by the HRI Catalogue.
Q: How does this work for material collected for healthcare (nader gebruik), like tissue?
Alternative Flow