Generalalised Guifance for Creating new Clinical Data Sets
Dataset to be collected: Diagnosis data
FAIR Objectives & deliverables (Guidance: see Metroline XYZ)
Objectives
make data available for future research
ensure others can understand the data
ensure data can be with other datasets
Deliverables
Queryable FAIR diagnosis data
publish dataset in Castor FDP, which is harvested by HRI catalogue
Collecting the data (Guidance: see Metroline XYZ)
Build the Cator EDC study with the fields of interest (codebooks?)
Communities already over here?
Collect the data
Map (Guidance: see Metroline XYZ)
Publishing the dataset
Required: Core metadata model
Desired: Health metadata model (is this extended core?)
Petals - Domain specific model(s)