Future location in general Health-RI wiki: child of Information
STATUS: UNDER DEVELOPMENT
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The ultimate goal of the Health-RI data infrastructure is the reuse of valuable health data. Making this data FAIR (Findable, Accessible, Interoperable and Reusable) is therefor integrated in the architectural design.
Data that will be included in the Health-RI infrastructure needs to meet certain requirements: technical, ethical and FAIR related. These requirements are closely related to each other and will even overlap. The FAIR requirements cover amongst others metadata definitions, accessibility processes definitions, standards used for the coding of data, license definitions for reuse of data etc. We are currently in the process of defining these requirements.
In this section you can find background information on FAIR, for a broad audience, but also detailed information on what FAIR data means in the context of the Health-RI data infrastructure and for funders such as ZonMw and KWF.
Further elaboration of this page and children pages will follow in future.
In the Health-RI FAIR Data Implementation team we work on 3 different themes, together with professionals from the regional nodes (such as Data Stewards):
Below you find more details on these activities.
You can find more /wiki/spaces/FSD/pages/163119105
Making data FAIR
Developing shared work processes and standards
portfolio demonstrators/champions
Standards
Metadata Core page [add link]
specific (FAIR) requirements for onboarding into the national Health-RI infrastructure
FAIRification process / FAIRification workflow: steps you need to take in order to meet a certain FAIRification goal
Phase 1…
Step 1 FAIRification objectives:
Step 2
Phase 2…
Training and Capacity Building
Building expertise among data professionals
an overview of FAIR related training and capacity building.
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FAIR advocacy
Creating awareness of the importance of FAIR data
FAIR data in funded health research projects
Funders such as ZonMw, KWF and Health-NL recognize the need for effective collaboration around a robust national health data infrastructure for the (re)use of FAIR (meta)data. They are incorporating the FAIR principles in their requirements more and more.
Health-RI is setting up /wiki/spaces/FSD/pages/33816783for making data FAIR together with ZonMw, which are valuable for their projects but also for other researchers interested in making their data more FAIR.