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Status
titledatum: 18-11-2024
Status
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titleStatus: FOR REVIEW

Info

This article is a help for those who also participated in the version 3.0 consultation. This article contains an overview of changes for the articles in wiki version 4.0 compared to version 3.0.

For each article is indicated

  • whether it is new or removed (column N/R)

    • + =New

    • - = Removed

  • whether there are major or important changes (column C) compared to the wiki version 3.0. Column C contains values 0 to 4.

    • Value 0 means there are no adjustments

    • Value 1 means there are no significant adjustments (only periods, commas, adjusted general terms)

    • Value 2 means there are slight adjustments

    • Value 4 means that there are so many or so serious changes that the entire article needs to be re-reviewed.

  • The St (status) column indicates whether an article is for review, under development or adopted in a previous version

    • R = for review

    • D = under development

    • A = adopted

  • The 'Ref' column contains a link to a further specification of the adjustments.

Article

N/R

C

St

Ref

Agreements on the National Health Data Infrastructure for Research and Innovation

0

A

Agreements summary

0

A

Reach supported agreements

0

A

The architecture is process-driven and user-oriented 

0

A

Data is made FAIR as close as possible to the source, for multiple use.

0

A

The data holder is responsible for making data suitable for multiple use.

0

A

Datacentrische benadering wordt gehanteerd, waarbij data en functionaliteit van elkaar worden gescheiden.

0

A

Health-RI standardizes data based on unity of language 

0

A

DCAT is applied as a standard for describing metadata of datasets. 

0

A

Standardized API to request and make available (meta)data. 

0

A

New research results obtained using the Health-RI ecosystem are suitable for multiple use from the start.

0

A

Generic functions are set up for both care and research & innovation, to prevent fragmentation. 

0

A

Unambiguous national dictionary for secondary use

0

A

National principles

0

A

Introduction

0

A

Reading guide

0

A

Change overview

4

R

See

Changes wiki version 4.0

+

R

Target audiences

0

D

Imaging working group

0

A

Omics working group

0

A

Participation in the Genomic Data Infrastructure

0

A

Inventory of Omics and Sample types and associated data and metadata standards

0

D

Genomics en Genetics

0

D

Transciptomics

0

D

Proteomics

0

D

Metabolomics

0

D

Exposomics

0

D

Microbiomics

0

D

Multi-omics

0

D

Obstacle removal trajectory

1

R

See

Architecture

0

A

Joint health data architecture model

0

A

Health data infrastructure for research and innovation

0

A

Disclose healthcare data

0

A

Connections

0

A

Relevant initiatives in the healthcare, reseach and personal domain

0

A

Preconditions

1

R

See

Principles

0

A

Glossary

2

R

See

FAQ open consultation rounds

1

A

See

FAQ Practical questions

0

A

FAQ Agreements

0

A

FAQ Acceptance

0

A

FAQ Architecture

0

A

FAQ Laws and legislation

0

A

FAQ Processes

0

A

FAQ Information and FAIR Data

0

A

Presentations open consulation rounds

1

A

See

Acceptance

2

R

See

Public information and communication

+

R

Citizen and patient involvement

+

R

National principles

+

R

Principle 1: Trust

1

R

See

Principle 2: Data availability

1

R

See

Principle 3: Data solidarity

1

R

See

Principle 4: Interoperability

1

R

See

Principle 5: Security

1

R

See

Law and regulations

2

D

See

Metadata around terms of use, authentication/authorization and ELSI aspects

+

R

Security

0

D

Organizational policy

0

A

/wiki/spaces/WV/pages/158667319

1

R

See

Nodes

0

A

Participants

1

R

See

Business objects

0

D

Business object Datamanagementplan

0

D

Business object Reseach proposal

0

D

Processes

0

A

Business processes

0

A

Main storyline research, policy and innovation

3

D

See

Context main storyline research, policy and innovation

+

D

Storyline: Generating research data

0

A

Storyline: Search data in metadata

4

R

See

Storyline: Request data

4

R

See

Storyline: Grant access to data

3

R

See

Storyline: Central analysis

4

R

See

Storyline: Federated Analysis

1

R

See

Storyline: Making data available

0

A

Storyline: Making imaging data available

0

A

Work processes

1

R

See

The metroline - Steps for your FAIRification workflow

0

A

Metadata onboarding on the National Health Data Catalogue

4

R

See

Work plan for creating datasets

0

A

Health-RI Services

+

R

Information

0

A

Data sets

0

A

Minimal (meta)dataset

0

A

Preferred standards

2

R

See

Registries

0

A

Persisitent identifiers

1

D

See

Application / IT infrastructure

1

R

See

Functional components

+

A

See

Systematic health data recording once for multiple use

0

A

System for unambiguous assessment and request of data

0

A

Automated process for managing, issuing and using the data

0

A

Functional components: tasks and responsibilities

1

R

See

Application functions

0

A

Application components

0

A

Abstract application components

0

A

Data request tool

0

D

Requirements for a data request tool

0

D

Data exchange platform

4

R

See

Requirements for a data exchange platform

4

R

See

Secure processing environment

4

R

See

Requirements for a secure processing environment

4

R

See

Requirements table secure processing environment

+

R

Multi-Party Computation

+

R

Concrete application components

0

D

FAIR data point

0

D

National health data catalogue

0

A

Requirements for the National health data catalogue

0

A

EUCAIM dataportal

0

D

Imaging applicatiecomponents

+

R

Img2Catalog: onboarding image collections

1

R

See

Clinical trial processor (CTP)

+

R

Applications secure processing environment

+

R

Applications federated processing environment

+

R

Generic Features

1

R

See

Addressing service

01

A

See

Authorization service

01

A

See

Centrale review committee data providing

0

A

Data Governance Committee

0

A

Research data Request ServiceFunction

01

A

See

(De)pseudonymisation service

01

A

See

Identification and authentication service

3

R

See

Localisation service

01

A

See

Metadata templates library

0

A

MDR-Notified Body

0

A

Application overview

0

A

Terms of use service

01

A

See